FED UP with Bleeding Disorders Act of 2026

(a) In general. Not later than one year after the date on which the report under section 3 is published, the Secretary, utilizing the information from such report and in coordination with other Federal offices and agencies, as appropriate, shall award competitive grants or contracts to one or more public or private entities to carry out a national, evidence-based education and awareness campaign with the aim of improving awareness of, and diagnosis and treatment of, women and girls with bleeding disorder.

(b) Consultation. In carrying out the campaign under this section, the Secretary shall consult with appropriate stakeholders, including national bleeding disorders organizations, national provider organizations, and the recipients of Federal grants relating to hemophilia.

(c) Requirements. The campaign under this section shall—

(1) be a nationwide, evidence-based campaign related to bleeding disorders in women and girls that is aimed at women and girls and at providers, including school nurses, pediatricians, primary care physicians, family medicine physicians, obstetricians and gynecologists, and hematologists;

(2) utilize strategies to ensure individuals living in rural and underserved areas are reached;

(3) include culturally and linguistically appropriate resources, as applicable; and

(4) include the dissemination of information and communication resources related to women and girls with bleeding disorders to public health departments, health care providers, schools, medical schools and health care facilities, including such providers and facilities that provide prenatal and pediatric care.

(d) Evaluation. The Secretary shall—

(1) establish benchmarks and conduct qualitative assessments regarding the awareness campaign under this section; and

(2) before the end of the last fiscal year for which funding under subsection (e) is available, prepare and submit to the Committee on Health, Education, Labor, and Pensions of the Senate and Committee on Energy and Commerce of the House of Representatives an evaluation of the awareness campaign under this section.

(e) Authorization of appropriations. To carry out this section, there is authorized to be appropriated $10,000,000 for each of fiscal years 2027 through 2031.