Surge to Save Newborns Act

330D. Special grants for newborn screening

(a) Establishment. The Secretary shall establish a program to provide grants to States for timely implementation of newborn screening for conditions on the recommended uniform screening panel maintained by the Secretary (or any successor panel).

(b) Eligibility. To be eligible to receive a grant under this section, an entity shall—

(1) be—

(A) a chief executive officer for health of a State, or the designee of such officer; or

(B) a State governmental agency; and

(2) shall submit to the Secretary an application—

(A) at such time and in such manner as the Secretary may require; and

(B) containing a description of how the entity proposes to use grant funds for implementation of newborn screening for conditions on the recommended uniform screening panel referred to in subsection (a).

(c) Annual reports. Not later than the end of fiscal year 2027, and each fiscal year thereafter through the end of fiscal year 2031, the Secretary shall submit to Congress a report that includes—

(1) a State-by-State identification of newborn screening implementation for conditions on the recommend uniform screening panel referred to in subsection (a), including—

(A) associated conditions; and

(B) for each State, the specific conditions for which screening has not been implemented;

(2) an evaluation of the effectiveness of grants under this section; and

(3) any recommendations of the Secretary for legislative or administrative action.

(d) Funding. Out of any money in the Treasury not otherwise appropriated, there is appropriated $35,000,000 for each of fiscal years 2027 through 2031, to remain available until expended, for grants under this section.